Tag Archive for: cancer

In 2013 our beloved dog, CB, was diagnosed with melanoma. It was a stunning blow to all of us and even the veterinarian had a hard time with the test results. The tumor was in one of the bones that made up his first toe on the right foot and we made the decision to remove the entire toe as a precaution. The vet assured me that he would do just fine without it and she was right.  Following several weeks of healing, he was right back to bounding up the stairs behind me every evening on our way to bed, back to three or four walks around the neighborhood every day.  You would never know he was missing a toe.

Six weeks after the surgery, the vet said we ought to give him the once-over to see whether there were any more tumors or spots we needed to check out.  As a nearly-10-year-old purebred, he had sprouted odd bumps and lesions here and there that we hadn’t ever really thought twice about. I pointed out a few that were larger but didn’t seem to give him trouble or pain and we did biopsies.

Most of the remainder of 2013 was spent either in surgery or recovery for our poor boy after discovering another large tumor on his back that had wrapped around his spine.  I learned several big lessons from all of this, but the one that I hope to remember for the rest of my life is how to act when you’re diagnosed with cancer, just in case I ever am.

During the visits where we first attempted to figure out what was going on with CB’s foot, he was the same as ever.  Happy, goofy, loyal, exuberant. For as long as we have known him, he has loved people (especially children his height), other dogs, water, balls, stuffed animals, and food. He loves nothing more than a walk around the neighborhood and sleeping on the floor in the same room where there is a person. Any person. He hates being alone.  He follows me from room to room all day long as I empty the dishwasher, run downstairs to do a load of laundry, sit at the kitchen table to write for a few hours, walk out to the alley to dump the garbage, and head upstairs to shower. If we walk past a car with a door or the hatchback open, he sees an open invitation for a ride, even if he doesn’t know the owner of the car. He doesn’t mind going to the vet in the slightest because it just means that someone else is going to pet him and scratch behind his ears.

After his cancer diagnosis, nothing changed. He was slowed down a bit by the bandages and stitches and a little dopey from the anesthetic, but he wasn’t angry or morose or withdrawn. His tail still thumped on the hardwood floor in anticipation of some attention every time someone walked by. He still struggled to all four feet upon hearing the word “walk” uttered by anyone anywhere.  He still perked his ears up at the sound of Bubba locking his car at the end of the day before heading up the stairs to come inside.

Even after five surgeries in nine months and weekly visits to the vet, he was unchanged with regard to his most basic personality. He was a little more hesitant to get in the car because that generally meant we were headed for some more poking and prodding, but I can hardly blame him. I was, too, because for me, it generally meant a huge bill and more heartache.

I don’t know whether it’s because he has very little control over most of the aspects of his life that he has chosen to embrace the things that matter most to him – connection with his human companions and pleasure-seeking – or if it’s even a “choice” at all. I just know that watching him continue to be exactly who he always was even as physical parts of him got chipped away steadily through most of a year was inspirational and touching. He never stopped trusting me to change his bandages and give him pain meds. He never refused to get up and walk or greet me with a huge tail wag. He never lost his enthusiasm for meeting other dogs or new people or carrying some goofy toy around in his mouth. Through it all, he stayed CB. CB with melanoma, to be sure, but CB nonetheless.

If I am ever diagnosed with a disease that requires me to undergo painful or debilitating treatment and is potentially life-threatening, I hope that I can remember how CB handled it. I hope that I can make my way, one day at a time, through the treatments, rely on others to help me, and never let it change who I truly am.  I hope that I can continue to focus on the things that make me happy and let them make me just as happy as they always have even if I don’t have the same energy to enjoy them that I once did.

As of now, CB is mostly back to his old self. I suspect that he has more tumors growing that we don’t know about, but he is living a good life and is very active thus far. We have decided that five surgeries is enough for one dog and, while we won’t let him live with debilitating amounts of pain, we are going to let him enjoy the time he has left without anesthesia or stitches or casts.  Every morning when the two of us get up to start the day, I am grateful for the gifts he has given me, not the least of which is the constant reminder to just be who I really am as much as possible.

Three posts in four days. That used to be the norm, but in the last year, I have gone to one or two a week and felt just fine with it.  I know I’m working something out in my psyche when I feel the need to write here more often and I also know it when I start to live in the stream of consciousness.

Stream of consciousness thinking is a way for me to dissociate. It feels like skating on a frozen pond, gliding across without any fear, gazing down below my feet and noticing fish darting about.  Every once in a while I magically breach the ice and reach in to get a closer look at one particular fish and sometimes I follow it for a while before letting go and coming back up to the surface.

I think that this process allows me to divorce myself from my normal routine or patterns of thinking and simply float through thoughts until one snags my attention.  Strings of thought emerge as I begin to notice which kinds of things are pulling me in and often I am able to come to some deeper understanding than I would have if I had diligently worked on finding a solution.

Sometimes, though, the things that catch my attention pull me in ways I’d rather not go.  At my physical yesterday, my doctor told me she felt a lump on my thyroid gland and wanted me to get an ultrasound to look at it.  She wasn’t concerned at all and figured it was simply a benign nodule, but she wanted to be sure.  I took my original cue from her calm demeanor, scheduled the ultrasound for the next day, and went on my way.

Over the next 24 hours I skated on that pond, only looking at the fish that reminded me of my mother’s thyroidectomy some 20 years ago and the one that suggested maybe my hair was thinning and that might be a bad sign.  I skated past signs that said pithy things like, “If you’re going to get cancer, thyroid cancer is the one to get.”  I read my friend Emily’s blog, Holy Sit, where she writes about spending a year eradicating her cervical cancer using alternative medicine.  I woke up a full hour before my alarm went off, wishing I were tired because when I sleep I forget.  Opening my eyes, I looked at the dark room and rattled off a list of things for which I am grateful and that’s when the shaking began.

I managed to get the girls to school without betraying my emotions, only letting tears fall as I walked the dog around the block to pee.  I wondered who would help Bubba raise my girls if I die. Or who would run the household for me if I get sick and lie in bed for a year.  I shoved the dire predictions out of my head with an impatient shake and decided to skate circles on that pond until my appointment, floating above everything else as long as I could.

When I got to the radiology department, more practical concerns entered my head.  I have a ‘thing’ about my neck.  I don’t like things touching it.  I wondered idly what would happen if I started gagging or giggling when the technician pressed the wand into my throat.  I wondered if I would be allowed to swallow while she did the exam.  I wondered if, on the off chance I started to cry, she would be able to discern the lump in my throat on her screen.  I wondered what causes that lump, anyway, when you are about to cry.

I had to lie on my back with a foam cylinder under my neck that tilted my head back and exposed my throat. I felt like a chicken on my great-grandmother’s chopping block.  ‘Make it quick!’ I imagined myself saying and felt like laughing at my own joke.  I had to turn left and then right as she swirled the wand over my throat through the warm goo, clicking keys on her keyboard and taking 40 pictures or more.  When I swung my head to the right, I could see the screen clearly and watched as she marked off measurements, “THYROID SUP,” “L LAT THYROID.”  Then she started marking off smaller areas just to the side of my thyroid and a tear slid from the corner of my eye into my right ear.

After 30 minutes, she handed me a towel and told me she saw nothing out of the ordinary.  There are nodules.  They are perfectly normal – happens to a lot of people.  It may not affect how my thyroid functions at all, but now that we know they are there, we will want to keep an eye on them.

When she left the room so I could change out of the gown, I let myself cry hot tears of relief.  I buried my face in the gown and sobbed. And then I went to the grocery store.  After all, Eve’s birthday slumber party is tonight and we have to have supplies.

I’ve been doing a lot of thinking lately about toxins.  Mostly, it seems that the topic finds its way to me rather than me seeking it out, and that could be a result of the heightened awareness in the US of just how many chemicals we come in contact with every day.  Whatever the reason, I’m doing my best to examine the issues as rationally as I can without freaking out.  The difficulty for me comes when I bump up against cultural or societal standards that don’t jive with what I’m learning – especially in a social setting – and I’m not sure how to proceed.

A few months ago I decided to toss all of my antiperspirant/deodorants and go looking for more ‘natural’ products.  I had been reading about more and more studies investigating links between aluminum and parabens (both present in the majority of antiperspirant/deodorants) and breast cancer. While there is no ‘definitive’ evidence yet, the fact that more than half of all tumors found in breast tissue contain either parabens or aluminum or both was enough to make me hedge my bets and find something else.  I did this quietly (although I also replaced both of my daughters’ old products with more natural ones and explained to them that I felt like it was better to use more natural products than man-made chemicals) and haven’t tried to convince any friends or family to do the same.  I don’t want to be obnoxious or presumptuous.

For years now I have bought mostly organically grown foods and avoided milk that is produced by cows who are treated with growth hormones. I spend the extra money for grass-fed beef and free-range, organic eggs and shop as locally as possible.  Again, this is a lifestyle change I have made personally and I don’t go out evangelizing or pushing these choices on anyone else for the most part.  One notable exception to that is that I will occasionally share my views with like-minded friends on Facebook, either by ‘liking’ something they link to or mention or supporting a particular company.

I do feel as though it is challenging to find evidence that is concrete one way or the other in many instances. It often seems as though choosing sides is the American way and once you’ve decided which team you’re rooting for, you have to believe every single thing they say. More often than not, I try to err on the side of not messing with Mother Nature and eschewing products that contain things I’m unsure about.

Ultimately, I don’t support companies like Montsanto because I think genetically modifying food products is a recipe for disaster. We may think we’ve tested these ideas, but we can’t know what will happen generations down the line. I agree that finding ways to keep the global population healthy is important, but in my experience, shortcuts almost always lead to disaster down the line.  Manipulating the balance of the ecosystem by giving some plants and animals a leg up over others could (and often has) come back to bite us in the butt.

But I don’t like to get in to conversations about these kinds of things.  Especially with people who disagree with me.  Not because I am unsure about the evidence I have for my ideas, but because I am unsure that there is any way to know definitively until it’s all over and done.

I will not get my girls vaccinated for chickenpox or HPV. Won’t. They also don’t get an annual flu shot.  Neither do I. At the risk of sounding like a paranoid consipiracy-theorist, I don’t trust the medical model that tells me to put chemicals I know are toxic (yes, they do still use thimerosal – aka Mercury – as a preservative in vaccines) in to my body or the developing bodies of my kids.  I wish I could say that I am 100% certain that vaccines are responsible for many developmental delays and disorders such as autism. I can’t. But I think the science that points in that direction makes sense – and I do have a degree in biology with a minor in chemistry, so I have some credibility there.  And I do think that the vaccine manufacturers and the AMA as a whole have a vested, non-impartial interest in continuing vaccine practices.  And I’d rather not look back 25 years from now and regret that I didn’t listen to my gut.

Do I want to cite studies and get in to a war of words with someone who is convinced I’m wrong?
Nope.
Will I continue to make decisions I think are best for myself and my family?
Yep.
Will I come to the defense of others who want to do the same?
Absolutely.

So what about developing countries? What about organizations that are doing their best, in an altogether altruistic fashion, to prevent disease in third world countries? How do I support their mission if I don’t believe in the way they go about it?  I would love to say I fully embrace the Gates Foundation. But they are firmly connected with Montsanto and dedicated to vaccinating practices.  I love the notion of mosquito nets and tried-and-true contraception/family planning methods.  I can’t get behind planting GMO corn and soybeans in a vulnerable country and giving possibly-toxic vaccines to a vulnerable population.  Therein lies the rub.

I do take advantage of many of the conveniences of modern life, many of which I know are not good for the planet (my car, plastic garbage bags, cat litter) or myself (Advil, maxi pads, ice cream). I am not naive enough to believe that I don’t benefit greatly from some of the things chemists have concocted over the years.  But I am doing my best to avoid doing more damage than I ought to, both to myself and the planet at large.

So, as much as possible, I will keep my mouth shut and go about living my life the way I think is best. You may wrinkle your nose as I walk past you on a hot, sunny day because my armpits aren’t fresh-pear scented, and you may get pissed off that my kid shows up to your school without the full complement of shots, but if you disagree, please just acknowledge my right to make my own choices and do your best to avoid vilifying me for it.