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Elizabeth posted this comment on yesterday’s random thoughts in response to my words about condescension:

The more I think about it, though, the more I am convinced that the particular people I wrote about are never going to budge. That doesn’t depress me as much as it makes me realize that it’s not about vindication and that I will move forward even as they stay put. “

Yes. It isn’t about vindication at all and, if it was, we are all likely to remain incredibly disappointed by those in power who are not interested in shifting the dynamics.  For me, though, it is about being heard.

I am just naive enough (or maybe it’s idealism – I’ve been accused of both) to think that when someone invites me to be part of a conversation, they are actually open to hearing what I think. In the case of the meeting with the Surgeon General a few weeks ago, I was also naive/idealistic enough to think that it might really be a conversation, a dialogue between him and the parents in the room, but it was more like a transaction, a sales call where he showed up saying he was interested in what we wanted and ultimately sold us the only thing he had brought to sell – his canned comments and rhetoric. I don’t believe there was ever anything else on offer besides an opportunity to sit in a room and say his piece. Given the number of times he was asked a question that he failed to answer at all – instead steering his words toward another subject altogether – I am convinced that there was some preexisting agenda that included the rest of us as simply warm bodies to receive his message.

That, I am not interested in. I don’t want a transaction, whereby I simply sit passively and receive the information others want me to receive. Nor am I interested in vindication – some magical moment wherein the folks in power have an epiphany and shout, “You’re absolutely right! We should have seen it all along!” as they hang their heads in shame. That might feel really freaking amazing in the moment, but ultimately it doesn’t do anything to – as Elizabeth says, “move (us) forward.” And it doesn’t do anything to alleviate the frustration and/or suffering that came for years as I tried to get anyone to listen.

Last October when I was in New Mexico with the likes of Alice Walker and Gloria Steinem, someone said (I think it was Gloria, but I honestly can’t remember), “If you want to stop someone in their tracks, tell them you don’t believe them.” Yes. But, I would add, it is even more powerful to send them the message that you aren’t even interested in hearing them. And that is the message we get when these kinds of events are scheduled, ostensibly to hear various perspectives, and the only stories that are allowed any oxygen are the ones that have been told over and over again. This is a tactic that has been used for decades – deny that there is a problem. Pretend that those voices that tell a different story belong to folks who aren’t smart enough to really know what they see/feel/experience, or that they aren’t important enough to pay attention to and they will eventually go away or start questioning their own sanity.

The difference these days is that we have other ears. Social media has given us the opportunity to find others who are telling the same stories and band together to raise our voices. If we can’t have a dialogue, at least we can change the venue a little. Instead of continuing to hit our heads against that brick wall that the powers-that-be have put up for us to write our protests on, we can turn around and go somewhere else where we will be heard. We can validate each others’ perceptions and continue moving forward, with or without them.

On self-awareness and how much I love it when my kids have it:

 – Lola got some sad news yesterday that her beloved mentor is moving to the East Coast. I braced myself for her reaction, given the fast, intense friendship the two of them developed that quickly grew into a foursome with her mentor’s partner and Eve. I knew this was going to be a tough pill to swallow. When she gave me the news, her face was so sad and I had to remind myself around the lump in my throat that the best thing I can do is follow her lead and hold space for her.  I hugged her tightly and offered to hang out with her for a bit, but she declined, saying, “Nah, I’m just going to go upstairs and be sad for a while by myself. Thanks.” It sucked for me because I want so badly to soothe her feelings, but I love the fact that she knows herself well enough to make sure she has space to just sit with them for a bit.

 – After a busy weekend including one sleepover on Friday night and a matinee of Mamma Mia on Saturday followed by a dinner out with a girlfriend, Eve came down to lunch today and announced that she was putting her phone on “airplane mode” for the rest of the day so she isn’t tempted to answer texts or check social media. She has too much she wants to get done. Hallelujah!

On condescension and unsatisfying “conferences” or “town hall events:”

 – A few weeks ago I was invited to be in the room with the Surgeon General and MomsRising constituents to talk about the recent measles outbreak and vaccines.  I was told that I would be one of only a dozen or so folks in the room and spent the weekend doing research and polling friends so that I could go in prepared to advocate and ask the kinds of questions that get past the hype and rhetoric. I was, in fact, one of only a handful of people in the room, but it turns out that this “meeting” included nearly 12,000 other phone-in audience members and, as such, we were relegated to asking questions via index card without any opportunity to follow up or challenge misinformation. I later discovered that the Surgeon General was on a country-wide tour of cities with the lowest vaccination rates in the US and I suspect it was more of a PR stunt than any real opportunity to have dialogue with folks about their actual concerns.  (To wit; when MomsRising did real-time polls of the 12,000 people online, they discovered that only about 35% of them were concerned about the measles outbreaks in the US and that more than 50% of them are concerned about the safety and efficacy of the MMR vaccine.  He did nothing to address either the media hype or the actual concerns people had.)

 – It makes me crazy that my experience was not very unusual. Elizabeth writes here about an epilepsy conference she was invited to as a parent who could share her unique perspectives with medical professionals and other families where she was condescended to as someone who is not a medical professional (duh, that’s the point) and not given the airtime she deserves.  I wonder how much the organizers of these events pat themselves on the back because they think they’re providing opportunities for sharing of diverse perspectives. I wonder whether they realize that what they are really doing falls so far short of that it is laughable (if it didn’t make me want to shout and cry, instead).

On priorities:

 – I had a great phone call with a friend on Thursday that reminded me how important it is to occasionally revisit the things I do on a regular basis with an eye toward whether or not they still “feed” me. On any given day, there are a number of things on my to-do list that I don’t particularly love doing, but I also have a tendency to get sucked in to doing bigger things that fall in my lap one way or the other and become part of my routine. It’s really easy to just keep plugging along, putting them on my list week after week without stopping to ask if I still enjoy them. And if there is an overwhelming number of things on my list that drain me, I have to also remember to populate the list with a few things that replenish me. On those days, a 30 minute power nap or a walk with a friend or sitting down to read a chapter of my book is just as important as everything else.