Can We Please Stop Telling Girls and Women to be Polite?

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Sexual assault weighs heavily on my mind of late. Between the former Subway pitchman admitting to child pornography and rape of children, and the New York Times story of ISIS using rape as a strategic tactic, and the trial of a prep school graduate who is alleged to have raped a fellow student as part of a graduation ritual, the news seems saturated with it. I am reading Jon Krakauer’s book on campus rape, “Missoula: Rape and the Justice System in a College Town” at a snail’s pace because the stories give me a stomach ache, both with regard to what the students went through as they were sexually assaulted and the treatment they faced from police officers and prosecutors and school officials, not to mention the perpetrators. As the mother of two daughters, it is increasingly difficult to not see threats around every corner. As a sexual assault survivor, I know all to well the power of such violations and the trails they weave throughout a life.

This morning, I was particularly struck by the article on Jezebel (referenced above) pertaining to the testimony of the alleged victim in the prep school trial. She was quoted as saying,

“I didn’t want to come across as too offensive or rude….I didn’t want to cause conflict,”

 in response to a crude email invitation he sent to her to join him.  In other testimony, she said,

“I tried to be as polite as possible.”
“I wanted to not cause a conflict”
“I feel like I had objected as much as I felt I could at the time. And other than that I felt so powerless”

And while many people have (and will continue to) comment that this girl was stupid, that by making those choices, she clearly wasn’t really objecting to sexual contact with this man (he was over eighteen at the time and she was either 14 or 15), her words resonate with so many women and girls.

To this day, I still wrestle with telling my massage therapist or the dentist that I’m uncomfortable, to go easier, because I don’t want to be rude or tell them how to do their job. Saying it out loud sounds ludicrous, but I was brought up as a compliant Catholic girl who was to always assume that my elders knew what they were doing. I was not to question them or challenge them, but to defer to them and make them feel good. Not only was that the “Right” thing to do, but I quickly learned that it was the best way to get them to like me. It made me the perfect victim of childhood sexual abuse by an older boy. I never said a word. I’m certain that as I lie in his dank, sweat-scented, 17-year-old boy bedroom and he assaulted me multiple times over a period of months, I never cried out, fought back, said no. I know that it was decades before I ever told anyone, and every time I considered it, I saw his mother’s face in my mind and wondered what it would do to her. I saw my own mother’s face in my mind and wondered what impact it might have on her if I told – would she be seen as a horrible mother? Would she think of herself that way? It never occurred to me to ask whether or not anyone would believe me because I wasn’t going to tell – it would disrupt too many lives.  I wasn’t weighing my own life in this equation at all. I had absorbed the messages served up to me by the church and our culture too well. It was more important to be liked than it was to stand up for myself. It was more important to preserve the feelings of someone else (especially if they were older than me or male) than it was to express my own feelings.

Forgive us. And let us learn from this.

Let us teach our children that they can always apologize for being rude, but they can’t ever take back those moments where they didn’t stand up for themselves.

Let us teach our children that they matter as much as everyone else around them, that their opinions and thoughts are just as valid.

Let us teach our children to listen to their gut, to develop that spidey-sense that defies logic and is always right.

Let us teach them that they have a right to draw boundaries, whether anyone else likes it or not.

I have done my level best to help my daughters understand these things. They have been accused of being insolent or rude by some family members for “talking back,” but I’ll take that over being walked on any day. If they ruffle some feathers by being outspoken and opinionated, by refusing to do something they don’t want to do even if it will make someone else happy, I’m okay with that. And I sincerely hope that, with enough practice, if either of them ever finds themselves in a dark room with someone who is determined to overstep their boundaries, these lessons will come back to them and they will say to themselves, “F*ck rude – I said NO!” It is not a silver bullet, but it is something.

I am officially done with the culture that encourages girls to sublimate their own wishes in order to make anyone else feel good.

I am officially done with the culture that encourages boys to find conquests and ignore the wishes of others so that they can make themselves feel good.

It begins here, with a pledge to do better. To teach our girls and boys that they are, first and foremost, human beings deserving of respect, especially by themselves.

Related writings: Campus Rape
10 Things I Want My Daughters to Know About Sex
Rape in the Military

The Damaging Nature of Expectations

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I have been thinking a lot about expectations lately and how often we see them as concrete scenarios that drive our actions and emotions.

It started with watching my girls this summer, observing times when they would hatch plans with friends over text, going so far as to figure out movie times and counting their cash on hand and solidify the details only to be foiled by me when I reminded them that I’m not available to drive or they were already obligated to a babysitting job or day of camp. Oh, the disappointment and frustration that ensued! Often, I was the target of anger for simply pointing out that they hadn’t thought through the whole thing or asked the right people for input.

Then last week, Bernie Sanders came to Seattle for a few events and I watched the rage unfold on social media as he was preempted by two activists addressing the crowd about the Black Lives Matter  movement. Despite your personal feelings about the tactics or the movement or Sanders’ presidential bid, I am curious about how much of the anger and frustration was as a result of the expectation of the crowd that they would hear Sanders speak. I suspect that, had the two women been on the program, people would have received them warmly and openly, but since they had stood outside in the hot (for Seattle) sun waiting for hours to hear Sanders and then were disappointed, many of them reacted poorly to the fact that he left without speaking more than to the message of the activists.

I think that, generally, there are three kinds of expectations we have, positive, neutral, and negative.  Positive expectations represent our hopes – calculating the hours on our paycheck in order to know whether we’ll have the money to purchase the thing we really want, killing it on a job interview, giving birth to a healthy baby. They can be big or small, but these are the ones that really slay us when they don’t come true. Negative expectations represent our fears, and instead of disappointing us when they don’t come true, I think they often keep us from taking the kind of leaps that will help us grow or push boundaries that maybe need to be pushed. On more than one occasion, I have had to talk myself into approaching someone and asking for something that I think I deserve because my expectation is that I will be laughed at or turned down simply because I am not male.

Neutral expectations are those that are typically placed on us from the outside, either our family or friend groups or culture and, often, they aren’t expressed specifically but we internalize them all the same. It can be a strong feeling that our parents expect us to do well in school and get into college, that as young women or men (because of our gender identity) we will act and speak and dress a certain way, but it can also be our way of placing expectations on other people – that because someone looks a certain way, they will act in accordance with our expectations.

As I was puzzling through this train of thought, I saw this headline:
JURY SELECTED IN NEW HAMPSHIRE PREP SCHOOL RAPE TRIAL
When I clicked through and read the very short article, I experienced such a toxic stew of feelings – sadness, anger, disappointment, fear – and I wondered about the accused and whether the culture “in which boys about to graduate attempt to ‘score’ with younger female students” (specifically, that they ‘take the virginity of a freshman girl,’ sets up an expectation that this behavior is normal – even desirable. In no way does this excuse or justify his behavior (this aspiring DIVINITY student), but could it be one more example of ways in which we human beings trick ourselves into believing that expectations almost always equal reality? That they somehow ought to come to fruition or that there is nothing we can do about it? 


It is terrifically hard to walk through a day without having any sort of expectations. But I wonder what would happen if I practiced noticing them and challenging them a little? What if, the next time I assume something positive is going to happen, I take a minute and acknowledge that things could go horribly awry and pledge to be flexible if they do? Or what if the next time there is a negative expectation, I ask myself where that comes from and what might happen if I dismantle that notion? I’m getting to the place where I think that all of those external expectations ought to be challenged and dissected so that I can decide whether they limit me or raise me up. 

Work-Life “Balance” for the Stay-at-Home Parent

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First of all, I think that the way we generally talk about the entire concept of “work-life balance” misses the mark. All too often, I hear it spoken of as though it is a fixed point, something to achieve and then rest in. As I creep ever-closer to middle age, I am cognizant of the fact that assessing the time and energy I put forward into different areas of my life is an ongoing process. Before I was married, there were certain goals and values that drove how I spent my time. After marriage, they shifted. When Bubba and I bought our first house, they shifted again. Having kids threw a huge wrench into how I saw the minutes of every day, and now that they are older and more independent, I am re-evaluating again. There is no such thing as a fixed target to shoot for.

When I left my paying job to stay at home with my kids, there was this assumption that I had no “work,” and to be completely honest, I bought into that idea for way too long. The fact is, because of my inability to compartmentalize the different aspects of my life, what really happened was that my work became my life. That is, everything mothering and household-running was so important and so pressing that I did it 99% of the time, but because I didn’t consider it my job, I didn’t fully acknowledge that I had ceased doing so many of the things I enjoyed doing before that I considered my “life.” I had allowed everything to bleed together and become one which meant that I had very little that was just mine.  Because very few others recognized what I was spending the majority of my time doing as “work,” it was hard to justify my frustrations with this dynamic, which made me all the more unhappy.

Prior to having children, I had lots of ideas about the kind of work I wanted to do, things I might find meaningful and worth spending 40+ hours a week doing. I wanted to enjoy my work, but I also wanted to be able to fully enjoy those other parts of my life like working in the yard and hiking with Bubba and having dinner with friends. As soon as I quit to stay home and the hours of “work” were not  clearly delineated, the shift was monumental. When I was at my office, I couldn’t empty the dishwasher or fold a load of laundry or fix the bathroom toilet because I wasn’t physically at home to do it. Now, suddenly, at home, it felt as though I were cheating if I chose to sit on the couch and read instead of doing any of those things because my home and my children had become my work and it was staring me in the face all the time.

Over the past fifteen years, my level of freedom from parenting and household work has ebbed and flowed, and I have had the opportunity to make choices over and over again about what other kind of meaningful work I can do – paid or not. I have obviously chosen writing as one of those things, but I have also found volunteer positions with organizations I want to support. I have come to understand that the most important question I can ask when I consider doing any kind of work is not “do I have time for this?” but “how will this feed me?” If I choose to spend my time engaged in activities that align with my passions and interests, even if they are intense and challenging, I know from experience that I will ultimately end up feeling energized and sated. There will be times when that work means I won’t cook dinner from scratch for the family or the dog won’t get his customary three to four walks a day or the laundry will pile up, and that’s okay. The freedom to schedule my own time, to float between different types of work is something for which I am immensely grateful. Being the primary parent to my kids means that my work is often a reaction to something else – hunger, dirt, transportation needs – and it is generally satisfying, if only until the next meal or pile of laundry or basketball game. Having the ability to engage in other work that is proactive and creative is something that feeds me in a different way, and that is just as important. My work and my life are very closely intertwined and it is often hard to see where one leaves off and the other begins, but I’m not sure that it is important to discern those boundaries.  Knowing that there are some tasks I will engage in that I really don’t enjoy is okay as long as they are part of the bigger picture and the larger goals I have. For me, the trick is to make sure that I am mindful of the tasks that ignite a fire in my belly and I find a way to do them with regularity. Often, emptying the dishwasher again can feel like a slog, but if I’m doing it because I know I will be able to sit down and write or read or go to a meeting without wishing I’d done it, I have more mental freedom to fully engage with what I’m doing.

The typical way that we talk about work-life balance sets up a dynamic where the two are pitted against each other in some surreal tug-of-war where one necessarily ends up losing and the other winning, at least for a while. But the fact is, if we are actively choosing to spend time not working for pay (at least not full-time) and staying home with our children, the most important thing is not to parse out bits of time for “work” and “life” but to recognize that within this setup, we can actively choose to engage in things that we find fulfilling and interesting. When we do that, we are enhancing our lives and, by extension, our children’s lives because what they end up with is a happy, energized parent. This notion of some elusive “balance” between the energy we put into working and the energy we get from living is wholly false. If we are lucky, the two overlap in a Venn Diagram that allows us to find compensation and purpose and a sense of enjoyment without guilt. And as our children grow up and become more independent, we will have given ourselves the gift of meaningful work that we can continue to engage in more and more.

Bubba and I have recently begun having conversations about what our life will look like in five years when Eve and Lola are both gone to college. At that point, it will be important for both of us to have some shared purpose and some individual interests. If we apply this particular way of looking at “balance,” and are able to identify the things that we enjoy doing together and apart, and fully support the others’ need to engage in both, perhaps the shift to this new lifestyle will be smoother. (Not that I won’t cry a big, ugly cry when my last one moves out, but, hey, it’s a start…)

Summertime

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Away from home is such a mixed bag. Time together with three of my favorite humans – Bubba, Eve, Lola – with nothing to do but enjoy each other is something to be so grateful for. Very little is asked of me in the way of my normal home-based duties. There is no chauffeuring, no cooking, no dish-doing, laundry perhaps once a week in some local, worn-formica-and-linoleum coin-op. And, frankly, I enjoy it. After togetherness all day (even sharing a hotel room with these three loves of my life), that 90 minutes of solitude in the laundromat is welcome. I get to see the natives as they do their wash, take note of the water-logged magazines and who brings their kids with them. I have fantasized about making a photo collage of the facilities and the characters who inhabit them – the rusty machines and change-makers on the walls, the folks who walk in barefoot (in Hawaii, anyway) and the tiny Asian men who shuffle in to wash their boxer shorts full of holes.

Summer vacation is a pleasure that flings me altogether out of my routine and nearly out of my skin. I read and read and, while I am often inspired, the only writing I do is to scratch out ideas on a fluorescent pink pad of paper, the threads of which I hope I can retrieve when I return home. By the time I set foot back on my own worn hardwood floors, I am torn between lying down with the pets on the floor and snuggling or restocking the refrigerator with our favorite things and simply retreating to my room to type, type, type. It takes a few days to slog through the email and the mail mail and the ever-present laundry (why can’t I just do it once a week at home? Is that some magic of the vacation? That everyone is judicious with their clothes because they only packed so much? Would it be wrong to just ask everyone to wear their bathing suit every day all summer with some flimsy cover-up instead of shrugging on shorts and t-shirts?).

I am full of ideas and also full of children and pets. There are walks to take, camps to drive to, meals to fix and extra kids to entertain and every summer I hope to stumble on the elusive perfect balance that will allow me to write all I want and soak in every drop of sunshine with my family. I have learned to accept this unease, this tension of desires. This morning, Bubba and the girls all went to the gym together and I asked him, “Is it wrong to say that I can’t wait to be here all alone for an hour this morning?” Walking the dog in the cool morning air, I avoided the route that would put me in chatting range with any friendly neighbors and when I reminded myself to breathe and just acknowledge what I am feeling, the image that came to mind was of a taut guitar string that had just been plucked. I vibrate with it all.

A Legacy of Love

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It was the freckles. I’m the only one in my house that has them – scattered all down my arms and hands, but as a kid, half of my household had them, and as far as I was concerned, they came from Grandpa. Most of his kids had freckles dotting their faces and arms and hands and many of their kids did, too – my cousins. But I don’t see that side of the family much except on Facebook, so when we flew to California for my cousin’s wedding this weekend and I walked in the door and saw people with freckles, I felt that tug of home, of connection.

There is something about going back to a place that holds so much history for me and spending time there with the people who first introduced me to it. Even though I never lived in that town, I have touchstones there – landmarks and memories that sit steadfast in my head and heart, and somehow I am able to navigate my way from the beach to the zoo to my aunt’s house and back.

Sitting in her living room on Friday night with my cousins, telling the same stories we always tell about the things we did when we saw each other once a year as kids, I felt so strongly a part of something bigger. Every once in a while I glanced at Eve and Lola and was glad they get folded in to this tradition every few years as well. Bubba has been around enough that he slips easily in to the group, trading jokes and recalling some of the same family lore.

On Saturday, when more cousins and aunts and uncles arrived, the chaos felt warm and comfortable. We met up at the beach, greeting new babies and walking in a pack, seamlessly moving between generations as we stopped to gaze at crabs and fish, use the bathroom, reapply sunscreen, talking and laughing easily. In the evening, in a crowd of more than 100 people, we continued the dance, shifting to say hello to more family with firm hugs and slipping into conversations without small talk. This is where I learned to do family – with these people who are smart and stubborn and funny and freckled. This is where I learned that you can disagree and tease and be in a bad mood and still be loved and cherished and celebrated. This is where I began to understand that, even as you display your own quirks and unique personality, you are tied to others by virtue of your similarities – like those freckles or having the gift of gab.

No matter how big this family gets, with weddings and babies born, it will always be strong and solid, cemented by the stories of childhood pranks and the sweet memories of Grandma and Grandpa. As we sat on a bench near the water one day, I looked over and saw my uncle wearing the opal ring that my grandfather used to wear and I felt a warmth, a continuity, a solid foundation behind me. He has the same freckled hands, the same long, graceful fingers, the same generous heart I remember, and when I see him holding his own grandchildren I know that the legacy of love my grandparents started will live on.

The Myth of the Supermom

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http://www.clker.com/clipart-super-hero-flying-silhouette.html

Yesterday was one of the loveliest Mother’s Days I’ve had. My girls are old enough to temper their sibling interactions with each other and put up with my sentimental slobbering with minimal complaining.  They were sweet and kind, funny and gentle, and Bubba had planned the day with lots of relaxation in mind.

I saw lots of wonderful messages in texts and on social media and I was so happy that so many other mothers out there were feeling the love yesterday. But there were a few things that gave me pause, even though I know they were meant with love and gratitude.

The whole “Supermom” thing has a twist on it for me, especially when it is held up by corporations trying to sell us something or organizations that are designed to support or revere motherhood. I am no Supermom. I am hardworking-good-enough-human-mom, and it has taken me years to get to the point where that is all I aspire to.

Several years ago, in my therapist’s office, I began my journey toward good-enough-mom. As I described some of the pressures I put on myself on a daily basis, the lessons I wanted to be sure to impart to my daughters, the life I wanted to provide for them, the people I hoped they would become, I noticed my therapist’s face change. I can’t describe it, but her energy shifted from wholehearted agreement and mentally patting me on the back for my wonderful ideas and intentions to skeptical, thoughtful.  I stopped talking mid-sentence and asked, “What?”

“You are trying to be Supermom. Good, healthy, hot, nutritious meals three times a day, enough mental stimulation, lots of emotional support for your girls and your husband. Keeping a tidy house, never being late for anything, making sure the girls get enough social interaction and their doctor and dentist appointments happen on time. Seeing that everyone gets enough sleep and not too much TV and good exercise daily, right?”

None of that sounded bad to me. I was confused.

“Where is the time for you? Where is the flexibility for mistakes or spills or spontaneous resting time?”

There will be time for me when the girls are older, when Bubba isn’t traveling so much for work, when….I thought to myself.

“You know that your girls are learning as much or more from watching you as they are by listening to what you say, right? They see that you are putting all of your efforts into making everyone else’s life perfect and smooth. They see that you have no needs of your own, and that is what they think mothers do. They see you utterly exhausted to the point of tears at the end of most days and they will internalize the message that they are expected to be Supermoms, too, when they have kids. Is that what you want for them?”

Oh, shit.

As hard as it was, from that day forward, I did my best to give up on the idea that being a Supermom was the highest form of parenting. I began trying to give myself some slack, to give myself permission to make cereal and bananas for dinner some nights, or order a pizza. I began to work toward a goal of good-enough-mom, if only so that my daughters would see that as a viable path for themselves. I started working on saying no to things I didn’t want to do for them and articulating that my desires were just as important as theirs. And it took a long time, but most days that is where I am. And so when I see messages in the mass media about “Supermoms,” it makes me sad to think that there are folks out there who are setting our girls up to believe that being hard-working-full-of-love-most-of-the-time-good-enough-moms aren’t worth celebrating.  Because I’m here to tell you that we are.

Shifting Perspectives

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I was reading a mental health journal this afternoon and the following phrase leaped off of the page and smacked me in the forehead,

” ‘Defiant, combative, hostile, and uncooperative,’ were labels used by many people who knew Sarah…but what if we saw her as “frightened, struggling to cope, confused, and abandoned” and dealing with the effects of extreme stress?”

Yeah.
What if?

It occurred to me that those labels used by so many mental health professionals, teachers, social workers, and other folks tasked with teaching and serving individuals with mental health issues and developmental disabilities are selfish. They reflect not the individual’s feelings or challenges, but the frustrations of those around them.

How many times have I seen someone from afar in public who is acting in a way that makes me feel uncomfortable or sad or afraid and labeled them according to what I feel instead of thinking about what they might be feeling? I would say, pretty much always.

And while it is important, to be certain, to protect ourselves if we feel as though we’re in danger from someone, these phrases – defiant, uncooperative, hostile, combative – are generally used to pigeonhole people who would benefit more from our help than our defensive posturing.

I am reminded of a time when Eve was little and we were meeting with our toddler group. The kids were all around 18 months old and had varying degrees of language. They had all had lunch and were tooling around the living room playing while the moms cleaned up and visited a little bit.  One of the boys walked up to the keyboard, climbed on the bench and sat down to play, but within seconds he was throwing an absolute fit, screaming, red-faced, flinging himself off the bench and causing all of us to come running in to see what was wrong. Nothing was immediately apparent – none of the other kids had touched him or tried to take his place, he was simply freaking out and nearly inconsolable.  When his mom picked him up and folded him into her arms, he arched his back and pulled away, screaming and clawing at her hair and face. We could have easily called those behaviors erratic, defiant, hostile, combative, uncooperative, and so on and so forth.  I remember pulling Eve close to me as she stared wide-eyed at the spectacle.

After running through a few options of what could be making him so angry, all the while fending off his little fists, his mom laid him down on the carpet and undid his overalls. None of us actually believed that a dirty diaper could be causing this much mayhem, but it was worth a shot.  When she undid the velcro fasteners and folded down the front of his diaper, she found a fork. Somehow, he had taken one from the lunch table, slipped it down the front of his overalls, and as he walked around and eventually climbed up onto the piano bench, it had fallen so far down inside his diaper that the tines were stabbing him in the penis. Every time his mom had moved him as she tried to console him, it poked him again. I’m pretty sure I’d scream and resist, too.

Even as we age and become more able to communicate with those around us, it isn’t always possible for us to find ways to express what we’re feeling, especially if we struggle with mental illness or developmental disabilities.  If we take the time to unravel the stories and really pay attention to the individual, it is possible to come to a point where we take their actions less personally and begin to see them as indicators of what this person is dealing with. Many people with mental illness have suffered significant trauma in their lives and while that doesn’t excuse all of their actions, labeling them with things that reflect how they make us feel rather than what they are feeling only serves to keep us at arm’s length, and connection is a powerful tool when you want to help someone. I have a feeling it’s going to take a lot of practice to shift my thinking, but I’m willing to try.

The Power of Cats

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My mother loves animals, but none more than cats. There has not been a day in my 43 years that she has not lived with at least one cat, and while she doesn’t go looking for them, the strays always manage to find her and move in.

My grandmother hated cats. I don’t know precisely why, but despite the fact that almost all five of her children grew up to have cats for pets, she was disdainful of them and wanted nothing to do with them. Grandma loved baseball, teaching, reading and traveling. Cats, she had no time or love for. Until she developed Alzheimer’s.

My aunt and uncle had a house in the hills above Santa Barbara and one summer, shortly after my grandmother began really struggling with her memory, a wildfire ripped through those hills and burned their house to the ground. For an agonizing bit of time, the family looked for their beloved cat, Cecil. When they found him, hiding among the hills, safe and sound, Grandma fell in love with him. We were all astonished. This woman who, for sixty years or more, had loudly proclaimed her hatred for felines, suddenly found a companion in Cecil, an enormous orange and white tabby.

One of my favorite pictures of her is this one, proudly clutching her new friend as he barely tolerates it.

Last weekend when I was at Mom’s house, I noticed her fixation on her cats. They both enjoy being outside during the day, and when we were at home, Mom got up every five minutes or so to peek out the windows or open the garage door to check on them. I was so taken aback by the size of her favorite, Moses, that I asked her if I could take a picture to send to Eve and Lola. I swear he’s part raccoon. He must weigh 40 pounds, and part of that is because Mom feeds him over and over again all day long, forgetting that she has already done it, and he isn’t about to protest. 

First of all, let me say that I know Mom would be upset if she knew this photo was posted. I know it’s not the most flattering shot of her, but it is the only one I got before the cat got too heavy for her to hold. I was struck, later, by the similarities I saw. Even though Mom has always loved cats and Grandma hated them for most of her life, the comfort and companionship they both got from interacting with cats is the same.

For the few days I was with Mom, we were both exhausted. I could see her trying really hard to hold on to the thread of conversation, to pay attention to everything I said and it made me wonder if I ought to slow down or tell the same stories over and over again to somehow set them in her brain. (That wouldn’t have been hard – I found myself telling her the same things repeatedly simply because she asked the same questions again and again. Ironically, I wondered if she heard me doing that and thought that I was getting forgetful). By the end of the day, we were both entirely wasted from the effort. And that was when I noticed what happened when she sat with the cat. Her face relaxed, her shoulders relaxed. Her entire being settled. I don’t know if it was the tactile sense of petting the cat or the rhythmic purring, the weight (oh, the weight!) on her lap, or just the fact that she could communicate nonverbally, but she was at ease. She could just interact with him by sitting quietly and petting him without any expectation that she would remember it or make conversation.

It’s no wonder she is looking for the cats all day long. They are familiar to her and she can do exactly the things they expect of her – feed them, let them in and out of the house, and sit with them quietly. It has to be a huge relief to get moments during the day that are like this when so much else feels confusing and chaotic. I’m pleased that my grandmother had Cecil for a while, despite her mostly lifelong hatred of cats. If he knew, he never let on.

It’s Not About Me

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“My brain is just mush right now!”
“It’s all just a blur. I don’t know why I can’t remember.”
“You can put it in that…thing over there that is meant to have food in it. That big, white thing. Right there.”

Mom is struggling. Whether it is due to her poorly controlled diabetes or the onset of dementia, or her family’s gene pool playing out its hand and dealing her the early-onset Alzheimer’s her mother had, I don’t know. And frankly, it doesn’t matter. The reality is, she can’t be alone these days for long without consequences. And since her husband recently spent a few days in the hospital for surgery, my brother and spent a few days tag-teaming her.  I got up at the crack of dawn on Saturday morning and headed down I-5, a little over four hours in the car chasing NPR stations as I went without one stop to pee or eat.  It’s been six months since I saw her, although I speak to her on the phone every few days, and I’ve been increasingly worried about her.

I wasn’t quite sure what I would find, but I was on edge. Her husband went in early Thursday morning for surgery and she sat vigil at the hospital, calling me every few hours to report, and getting increasingly panicky. By the fourth call, she had lost the thread that he was there for surgery and wondered why the doctors were giving him antibiotics and wouldn’t let him come home.  At 7:30, she called to report that she was at home, but it took her more than an hour to find her car in the parking lot at their small, local hospital, and she was annoyed.  When I checked on her Friday morning, she wasn’t sure whether she would go visit him, but she still couldn’t remember that he’d had surgery. She said he was at the hospital with a “bad cold.” My brother spent the afternoon and evening with her on Friday and texted me updates that scared us both. He considered hiding her car keys, but couldn’t get her out of the room long enough to dig in her purse and find them.

The hurricane of emotions picked me up and threw me side-to-side. I agonized over the four-hour distance between us, the kids I have at home that still need me a great deal, and thoughts of where do we go from here. Occasionally, I railed at the genetic sequence that put this destination squarely within my own sights and called Bubba to remind him that I’ve ordered him to push me off the edge of the Grand Canyon as soon as I forget the names of my friends and family. Time and time again I was sucked back into the ruts that demanded I “fix it,” find a solution, put some plan in place to deal with all of this.

And on my way home today, I remembered; it’s not about me. It just isn’t. This is about her. Occasionally, I saw glimpses of fear before she masked them. I felt tenderness when she followed me into the kitchen to see what I was cooking for dinner and lamented my eventual departure. I watched as she doted on her two cats, continually seeking them out to be sure they were warm and dry and fed. And when I have the presence of mind to recall that this is about Mom, I can relax and listen. I can sit with her and listen to the same stories over and over and reflect on what her touchstones are, think about the moments in her day that she holds on to. If I listen closely enough, she will tell me what she wants, and for now, that is the most important thing.

Stephen Hawking and The Ghost Boy

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Stephen Hawking. Photo by NASA

I’ve been thinking a lot about communication lately. I just finished reading Ghost Boy by Martin Pistorius. It’s the story of Martin, who succumbed to a mystery disease when he was a young boy that put him into a coma for two years. When he “awoke,” he was unable to speak or move any part of his body other than his eyes and some minimal movements of one hand. It took years before someone was able to assess him for brain damage and fit him with a computer device that enabled him to communicate with the world and everyone was shocked at how much he was aware of and understood during the time he was mute and paralyzed.

I have to say, the book wasn’t my favorite, literarily-speaking, but it did spark a lot of thought processes in my head.  And ultimately, it led to me watching The Theory of Everything last Friday night. I have loved Stephen Hawking’s brain since I first read Black Holes and Baby Universes for fun in high school. (Yes, I was that nerd). I went on to read “A Brief History of Time” and was completely hooked.  His story was different, in that people knew he was brilliant before he began struggling with the symptoms of ALS and could no longer speak or take care of himself, but I was still fascinated by how heavily verbal communication weighs in our assessment of each other as human beings.

I remember when my grandmother was rendered mute by Alzheimer’s disease. Although she had been increasingly confused prior to that time, it was still confusing to me whether or not she understood the lion’s share of what was going on around her. I recall thinking that I would go crazy if I were trapped inside my own head and body, unable to respond or make my needs known.

As a young mother, I recognized my infant’s frustrated cries as just that – a desperate longing to tell me what she wanted and to have some control over her world.  Fortunately for her, normal developmental progression let her gradually gain that control. But until she could, I had to change my response to her by listening in a different way, paying attention to her body language and context, the time of day and where her eyes moved. I had to trust that she was doing her best to communicate with me and it was on me to slow down, change my expectations, decipher the clues.  When I came from a place of love and genuine desire to know, while it was often challenging and crazy-making, I was able to be more patient.

Some of the stories Martin told about how he was treated by caregivers in various care homes were horrifying. The lack of humanity he was shown simply because he was unable to speak or move his body the way he wanted to made me sad. And it made me think about how often we expect others to communicate with us in the ways we are accustomed to, instead of thinking outside the box. Fortunately, there are those out there who are committed to finding ways to help people like Martin and Stephen Hawking express themselves.  As for me, the next time I encounter someone who doesn’t communicate exactly like I do, I hope I’ll have the presence of heart to slow down and find another way to listen.