Inspiration

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My friend and coach, Kris, posted something on her Facebook page yesterday that gave me pause. I watched it again this morning before taking the dogs for a walk and let it filter through my brain as we sidestepped puddles and admired the fat cherry blossoms and smelled the daphne perfuming the air.

Kris was talking about inspiration and how, sometimes, we sit and wait for inspiration to push us to action, and as we wait, we are frustrated and discontent. She wondered whether it is the discontent that is actually the source of inspiration, that if we take that first step toward action, the path will open up and we will begin to feel the motivation to continue. What if the frustration is the sense that there is a difference between what we say we want and what we are doing to get there, and that is actually the driving force, but our desire to wait for a clear sign to begin keeps us from doing anything?

Well, yeah, when you put it that way.

I have been feeling stuck a lot lately and as I walked and ruminated on Kris’ words, it struck me that I have been using that stuck feeling as an excuse not to change some things in my life that I can actually control.

I have long felt that I rely on wine and chocolate as crutches to make myself feel better, but since I am not overweight and I never get drunk, I haven’t sensed a reason to change my behavior.

But here’s the thing: when I indulge in those things in the evening, the narrative that goes through my head sounds a little something like this – I deserve this. It’s been a long day. Or – It’s a pretty small vice and I don’t do it every night. 


More often than not, the next morning, I shake my head at myself, wishing I hadn’t had that extra piece of Easter candy (damn you, Cadbury mini-eggs!), and sometimes I even go so far as to come downstairs and throw the remainder of the bag away. And I wonder what message I’m sending to my girls when they see me with a glass of wine almost every night.

The incongruence between what I say I want – to be mindful of food as fuel, to be active and physically healthy – and how I act is grating. And this shows up in other places in my life, too. I see in my Facebook groups that there are other writers who are getting their freelance work published once a week and I feel guilty – I should be out there hustling more work that is visible because the memoir I’m working on won’t see the light of day for a year or more.

Often, the way for me to get clarity on things like this is to let my mind create a picture, and this morning was no exception. I imagined myself standing on a beautiful beach, dazzled by all the little, shiny things dotting the sand. There are rocks polished by the surf, fully intact shells, smooth pieces of driftwood. I walk along and gather the ones that are the most intriguing to me, filling my hands and pockets and not really thinking about what I’ll do with them or where I will put them. I’ll figure that out later. Right now, they are a tangible sign of what I have – like publishing credits or a wine cellar that’s full. I feel the land beneath my feet and I am grounded. This is real. I can walk like this forever, back and forth.

But eventually, my hands are full and I’ve walked the length of the beach. And I realize that what I really want is to be out there, in the ocean, floating, being lifted and held and open to possibilities. When I’m in the water, that’s my inspiration, my true passion, my purpose. It is where I can be fully supported and I’m able to really get some perspective. When I float in the water, I can look back at all of the glittery gifts on the beach in their entirety and really discern which ones speak to me. I don’t have to gather armfuls of things just because they are lovely, I can truly choose the things that are congruent with the big picture of who I am and what I truly want. And I can come back in to the beach at any time, but when I remember that the floating, the be-ing is where I am most grounded, that it is here where I draw my inspiration, the beach seems like a place for occasional visits, not someplace to dwell and get caught up in the doing and the gathering.

Repost: The Power of a Gratitude Practice

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As a person who has struggled with anxiety and depression
throughout her life, perhaps choosing a career as a writer wasn’t the best way
to go. Writers, especially freelance writers, experience far more rejection
than the average person.
Fortunately, during some intense research I was doing on
adolescence and brain development, I discovered several studies on the power of
gratitude. When I was really wrestling with darkness, mornings were the most
challenging time for me. I woke up, opening one eye at a time to gauge whether
that semi-truck of pain and longing was heading for me before I swung my feet
out of bed onto the floor. Often, before I could get both eyes open, my mind
would begin to race and my heart would pound as I anticipated what the day had
in store for me. After reading about the way gratitude shifts our thinking
patterns and affects our brain chemistry, I decided to start each day with a
short list of things for which I was truly grateful. I envisioned it as a sort
of shield against that truck hurtling toward me.
In the beginning, it was often hard to come up with a list;
not because I don’t have many, many blessings in my life, but because I have an
innate tendency to qualify them. As soon as I think of one, I either compare it
to someone else and feel guilty that, say, my kids are healthy and I have a
friend whose kids aren’t – which effectively soils the gratitude – or it feels
trite and petty, like being grateful that I have enough money to pay my bills.
Even in my gratitude practice, I found myself wanting – either for more ‘pure’
things like love (which feels a little too nebulous sometimes, to be honest) or
for deep, profound items on my list that really resonated in my bones. I am
nothing if not stubborn, though, and motivated by the fervent desire to keep my
depression and anxiety at bay, I kept going despite the sometimes pathetic
nature of my lists. Every day, I thought that maybe tomorrow I could come up
with something beyond gratitude for my soft, warm bed, my kids, and my husband to
be grateful for.
When my teenage daughter was struggling with anxiety upon
starting high school, I encouraged her to start a gratitude practice to see if
it could help her. Every night before bed, I would text her three things for
which I was grateful and she would text me back right before falling asleep. My
hope was that if the last thoughts she had every day were ones that filled her
up rather than dragging her down, perhaps she would wake up with optimism for
the coming day instead of dread. Her lists began much as mine had. She was
grateful for a full belly and a soft pillow and a roof over her head. But over
time, she was able to open up and recall specific things that had happened
during the day that were positive – a friendly smile in the cafeteria, being
picked by a classmate to partner on a project because she is so organized, to
appreciating a trusting relationship with a special teacher. Her perspective
shifted over a period of weeks and she went from finding excuses to stay in bed
to getting up and tackling each new day and its challenges with a feeling of
competence and groundedness.
Over time, my definition of gratitude has developed and I’ve
come to understand what it is about this practice that has been so effective
for me. In the beginning, I often attempted to come up with things by starting
with, “at least I’m not….” What I discovered is that if I am comparing my life
to someone else’s (as in, “at least I’m not part of this oppressed group or
that oppressed group,” or thinking about all the ways my situation could be
worse such as, “neither of my kids is terminally ill and I’m not homeless,”),
I’m not really being grateful. That’s just another way my anxiety is telling me
my life could run off the rails at some point, so I should really be cautious.
Instead of helping me feel calm and centered, it is really reminding me that
one or more of those things could potentially happen and, for now, I’m just
dodging a bullet.
If I am making a mental note of the number of “good” things
in my life as compared to the number of “bad” things, that is also not helpful
gratitude. Weighing them against each other in a sort of balance sheet is not a
positive step. The fact is, both things exist simultaneously (and are often
intertwined with each other) in my life and in my mind, but gratitude is about
the ones I consciously choose to pay attention to. It doesn’t make the
challenges and difficulties in my life disappear, it simply allows me to notice
that there are many positive things in my life, too.
The human brain is wired to look for deficiencies, expect
sabotage, and find the things that need ‘fixing.’ This isn’t always a bad thing
– often I am happy to know that there is something I can do to make things
better. But unless I take the time to really engage in a gratitude practice, I
won’t notice the things that are absolutely right and lovely in the world all
around me. I might notice the pile of unfolded laundry lying on the couch, but
I can also choose to see that the dishes are all clean and the dog is fed and
happily snoozing in his bed and an essay I was working on this morning is coming
along nicely.
I am loathe to imply that gratitude is a complicated thing,
though, because when I am in the zone, it truly isn’t. When I am really tuned
in to the goodness and abundance in my life, the list of things for which I am
grateful grows quickly and easily. For me, the key to gratitude is to simplify
things. When I am frustrated and irritable, the best thing for me to do is stop
and look around. I see my computer and I am grateful for the ability to write
and connect with people who are important to me online. I catch sight of a
glass of water on the counter and appreciate clean water and a cupboard full of
dishes. I note my sunglasses on the table next to me and close my eyes and
thank goodness that I can so often feel the warm sun on my back. When I can
keep myself from trying to create stories or context, I can find simple, pure
gratitude and suddenly, there is more air in the room.

Knowing that every time I actively look for things that are
right in my life means I am activating the parts of my brain that produce
serotonin and dopamine gives me hope. When I started that gratitude practice
all those years ago out of desperation, I was beginning a process of rewiring
my brain to more easily find happiness. Sticking with it, I realized that it
does become easier over time to recognize and appreciate simple things that
give me joy. While I still struggle with anxiety (and rejection), I am more
able to see it as a part of this messy, glorious life I am living instead of
letting it keep me from getting out of bed in the morning.

The Waiting

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I can’t believe that it’s been over a month since I wrote here. Life is so full and so still, all at the same time. My daughters are continuing their inexorable shift to adulthood, the summer sun is giving way to brilliant oranges and reds in the trees while the light dims ever faster, and the house is quiet without my mostly-companion, CB. It is as though the days are pregnant with possibility and I can’t yet predict the due date. I have a completed first draft of my memoir sitting on my desktop, notes from a fellow writer scribbled in the margins. There are emails from folks interested in my other work waiting for responses I can’t bring myself to write quite yet. I voted by absentee ballot nearly two weeks ago and have sat in limbo since then, waiting for the moment someone will tally up my choices with the rest. There have been meetings about college applications for Eve and practice sessions for Lola’s upcoming band gig and it feels like the things on the calendar are both racing toward me and sitting out in the future like some hologram I can’t quite feel the edges of.

Some days, as I walk the streets of my neighborhood, I think that this must be what it feels like to float in a sensory deprivation tank. I know that there are things outside, but in this moment, I can only prepare and ruminate because it’s not quite time. I don’t feel a sense of angst or frustration about it, just an uneasy stillness. I have to remind myself that it will all unfold eventually and remaining open to the possibility and grounded at my core are the two healthiest things I can do.

When I was in junior high, we used to pass notes to each other in class – elaborately folded, origami-like things that would bloom open when you pulled a tab. The cleverness of the design was as satisfying as the note’s contents, and we had half a dozen different ways to put them together. I had a friend who was incredibly talented at folding a simple sheet of notebook paper adorned with a drawing that would show one thing when it was folded and another when it lay flat on the desk. I marveled at her skill but could not reproduce it. Trying to imagine the sequence of creases and the 3-dimensional shape of the paper was beyond my ability. I copied my friends and was able to master perhaps two of the special patterns and contented myself with crafting a funny or sweet message inside.

I feel a little like that now – unable to decipher exactly how things are wrapped up and packaged, and I am reminded that it has never been one of my strengths. Instead of picking at it or pushing myself to learn how to do it, I choose to wait until it unfolds and see what is contained within. Then, knowing that one of the things I do best is to add content, I will set about doing my part.

Working on Getting More Compassionate With Each Passing Day

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Sometimes I have revelations that are laughable. Things that I feel like I ought to have known or accepted years ago, but have only just recently sunk into my bones and opened my heart and mind up just a little bit more.

I had a boyfriend in high school that marked a huge turning point for me – a shift in the way I saw myself and the world. I think that’s not unusual. I know many women who made choices that were seemingly unlike their previous personality; a “rebel phase,” you could call it for some of us. It wasn’t a bad relationship, but it ended badly and it went on longer than I was comfortable with and for many years afterward, my impression of the entire time we were together was colored by sadness and resentment that I had wasted so much time.  Over the decade afterward, I moved on, boldly and purposefully, and determined to never repeat the kinds of mistakes I made during that time. As I moved forward, my characterization of my ex became softer and more understanding. I began to take responsibility for my mis-steps and the ways in which I contributed to the unhealthy dynamic of our relationship – at least in my own head. We had no contact until one day several years ago when I got a Facebook friend request from him.

I declined it without hesitation.

A week later, there it was again. This time, I looked at his profile, curious to see what his life was like, and what I discovered was that many of our mutual high school friends were connected to him online. My sister was his Facebook friend.

I declined the request again.

A few days later I got a message from him asking why I was declining the requests. He was incredulous that I hadn’t moved on, forgiven, gotten perspective on how young and stupid we had been. And the thing is, I had done all of those things. And I still didn’t want to be his Facebook friend. I think I dashed off some message to the effect that I had no hard feelings toward him, but that my life has changed significantly and I am only interested in relationships that offer positive energy. I imagined the eye-roll when he read it. Hell, I probably even rolled my eyes at myself when I wrote it, but it was enough to stop the requests.

In the last several years, I have occasionally seen his comments on my friends’ pages and thought not much of it.

Today, I saw something that my sister posted that reminded me of their friendship all those years ago – a shared love of skateboarding and punk rock music and aspirations for a particular lifestyle, none of which I had in common with them. And that’s where the revelation came in. While I never begrudged any of my friends or family for not banishing him from their lives when I did (and I did, albeit in a very sloppy way), I never really considered what he may have meant to them. I didn’t think about it. I never entertained thoughts of what he might have represented for my sister or another friend, what role he played in their lives, and how important it might have been. And as I sat and thought about it, I was struck by the notion that each of us means something unique to the people in our lives. The person he was with me is not the person he was with his skater-friends or his co-workers or his mother. All these years, I’ve been seeing him only through the context of my relationship with him and, while that was an important step in my own personal development because it taught me to define personal boundaries and honor them to keep myself safe, it is not the extent of the person he is. In terms of my personal relationship with him, it’s fine for me to see him through that lens, but in terms of a definition of who he is as a person, it’s unfair.

I know he meant a great deal to a lot of people I care for and it occurred to me that the more I can see each and every person I encounter through that lens, the better. Simply knowing, in my bones, that we all are so much more complex than we seem offers me an opportunity to open to compassion and understanding. If I can remember that everyone has the capacity for love and caring and likely offers that to someone in their own life, that each individual is important to someone else, I can begin to put less stock in my impression and allow them more space to show me those things.

I was in no position to do any of that in high school, to be certain. I was also incapable of seeing myself as a whole, complicated person, if I’m being honest. But the realization that different people can mean very different things to the people in their lives finally sunk in today and I think it has given me a higher perspective from which to see the world.

“Our goal is to have kind consideration for all sentient beings every moment forever.” Katagiri Roshi

Requiem for the Living

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I read somewhere a reminder that everything is simultaneously living and dying. And, of course I knew that, but we do our best to think otherwise, don’t we? We either work to ignore it or reverse it in almost every act we take. But the end is part of the beginning as much as green is born with shades of blue embedded in it.

And it made me wonder whether the best thing to do is simply to float along in full acknowledgment of this minute
 this moment  
 this adventure
Or should I work to give the living a little more advantage? Stretch out the living part a bit more? Use my energy to tip the scales?

It’s easy to go back and forth from camp to camp. So that’s what I do.

Sometimes I live in memory, stacking up joyful moments like gold bars, hoping that once the dying is done I will have this wall to lean back upon. And sometimes I realize that so much stacking means I’m not appreciating the living that is happening behind my back, and I set aside my blocks and turn around.

Spending time surrounded by the awareness that what is here now won’t be forever makes for a certain quality of awake-ness that is uncomfortable. It requires me to be mindful of emotional connection instead of physical action.

“I love you” versus “let me do this for you” or “let’s make new memories.”

It is also difficult to define the world in terms of Not-me. That is, to not process every potentiality and new situation with regard to what it requests and requires of me and how it makes me feel. I have to float back and see myself as one part of the whole and that both humbles me and reminds me that I am an important piece of the puzzle. That in any moment I can choose to turn my back, shore up the living, or accept my place and experience what is. Perhaps the beauty in that is that I do. I choose. Among the breath and the pulse and the movement and the slowing and the dying, I choose. And the more I can remember that it is all beautiful and glorious and a gift that I am here, part of it, for a while, the stronger I feel.

Diving In, Part 3: New Vaccines and Random Questions

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Part 1 is here
Part 2 is here


I would like to go on record as saying that I don’t think vaccines are a bad thing, in and of themselves. I do think that they have served an important function in our understanding and the prevention of many diseases. However, I don’t think there is such a thing as a panacea, as much as we would like there to be, and over the past few decades, the medical-industrial complex has become so interwoven with the public health system that I’m not certain it is serving the people it claims to serve any longer.


One example of this phenomenon lies with the development of HPV vaccines. I wrote about this in 2013 here, detailing my issues with the vaccine Gardasil. Since that time, more countries have either banned or started investigating this particular vaccine because of the high number of adverse side effects, and yet in the US, our public health officials continue to advocate for its use within an even wider population. It is now recommended that boys have this vaccine and that all children have it starting at a younger age (an age at which NO trials have been done to determine safety or efficacy). If we were truly interested in long-term public health and not making money for pharmaceutical companies, we would proceed cautiously with this vaccine which has been shown to have some correlation with teenage-onset menopause and severe neurological issues.


Another example of the rush to develop vaccines that (I believe) are unnecessary is the chickenpox, or Varicella zoster, vaccine. Ours is one of the few countries that routinely and widely vaccinates our children for this disease that has not been shown to be deadly in the vast majority of cases. This article found at the National Center for Biotechnology Information illustrates the reason why, after much scrutiny of the matter, the United Kingdom does not push chickenpox vaccines on its children as a matter of routine. The conclusion of the physicians there was that there are two main areas of concern regarding this vaccine:

1. “…introduction of a routine childhood vaccination drives up the age at which those who are and remain non‐immune get the illness and chickenpox tends to be more severe the older you are,”


and


2. “…what will happen to the epidemiology of shingles if chickenpox vaccination is introduced in the United Kingdom?”


The answer to these questions from pediatricians I have taken my children to are as follows:


1. If your kids don’t get the disease naturally now, because all the rest of the kids are vaccinated for it, they will more likely get it when they’re older, when it is much worse, so they might as well follow the crowd and get the vaccine. What they neglect to mention is that the efficacy of the vaccine has been shown to be between 3 and 5 years, which means indefinite booster shots for the rest of their lives. And if they don’t – say they forget for a year or two when they first move out (like in college, when they’re exposed to tons of different infectious diseases), they’ll likely get a horrible case of it. They also neglect to mention that, had we not developed this vaccine and given it so widely (as opposed to just kids who are immunocompromised or otherwise indicated to have it), we wouldn’t have the issue of kids not getting it naturally. 


2. There’s a shingles vaccine. Don’t worry. Great, so now, on top of the multiple chickenpox vaccines my kids will be getting for the rest of their lives, they have to get shingles vaccines? 


If you’re a pharmaceutical company, you’ve created a solution to a problem that didn’t really exist. But with the CDC on your side, you are guaranteed to have a captive audience for your vaccines for years to come. And in my state, physicians are given financial incentives (higher ranking with Medicaid and state insurance programs as well as payment) if they have a significant percentage of their patients who vaccinate fully. Thus the pressure I get every time I take my kids to the doctor for a check up.



It seems that, in the UK, they have decided to be more conservative with their recommendation and follow the research instead of the money. Interestingly, it turns out that in households with children who acquire chickenpox naturally, there is a smaller incidence of shingles. What that means is that there is likely a protective factor against shingles for adults living with children who have naturally acquired immunity to chickenpox. 
So, why the development of the chickenpox vaccine? Previous to the development of this vaccine, fewer than 100 people per year (out of 4,000,000 who contracted the disease) had complications that led to death. One hundred people sounds like a lot, but that is 0.0025% (or 0.000025) of the people with the disease. And the rest of those people had not only naturally acquired immunity, but some protection against shingles as adults. The normal lifetime risk of getting shingles is 10-30%, but the UK researchers noted that, with a chickenpox vaccine program, the incidence of shingles rises 30-50% until everyone is vaccinated, which could take decades. 

In my opinion, this particular vaccine has become a boon for pharmaceutical companies despite the fact that it protects very few people from the serious side effects of childhood chickenpox and instead, opens up an entire generation of young adults to risk for adult chickenpox infection and future shingles. If you add in the risk associated with multiple vaccines (some reported side effects of the Varicella vaccine include shock, seizures, encephalitis, thrombocytopenia and Guillian Barre syndrome), you’re looking at a lifetime of risking your health again and again versus the risks associated with acquiring chickenpox naturally and suffering it’s side effects.

Back when vaccines were first developed, they were designed to combat highly infectious, deadly diseases, and they were mostly developed by pure scientists who had little financial stake in the outcome. These days, pharmaceutical companies who are concerned with their stakeholders’ satisfaction commission their own scientists to create vaccines that may or may not be immediately necessary (the “fast tracking” of Gardasil is one egregious example of a corporate push to market that was altogether unnecessary) and gradually increase the population and number of boosters that are given, continually growing their market share. Until we can be assured that the entities who are recommending the vaccine schedule have no conflict of interest and have done truly independent studies on safety, efficacy, and necessity of each and every one of the vaccines on our current US schedule, it is unfortunately up to the consumer to advocate for themselves, their families, and follow the money. 






Diving In, Part Two (Or, Why the Vaccine Debate Isn’t Cut and Dried)

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In case you missed, it, Part 1 of my writing on vaccines in the US can be found here.



I suppose that, like most other very controversial subjects, it shouldn’t surprise me that the vaccine debate tends to get framed as an all or nothing, black and white, choosing sides issue. Whenever we are driven by fear, human beings tend to lose the ability to think rationally and begin to believe that there is a Right and a Wrong answer, and the question of whether or not to vaccinate can certainly be a fearful one.
I do continue to be mystified, however, by people who should know better – public health officials and medical practitioners, for starters – that position vaccines as an all-or-nothing proposition, and here is why:
Vaccines are not all created equal. Accusing me of being “anti-vaccine” because I am concerned about the safety and/or efficacy of some vaccines or the current US vaccination schedule is akin to saying I am “anti-car” because I wouldn’t consider driving a Volkswagen but I might choose a Toyota.

  • There are a vast array of vaccines available, some of which were created decades ago and some that are fairly recent. 
  • Some vaccines on the market are multivalent (that is, they are designed to inoculate against more than one disease-causing organism) and others are monovalent (for one organism only).
  • Some vaccines were created to work against bacterial disease and others were designed for viruses.
  • Some vaccines contain adjuvants (chemicals that are supposed to increase the body’s immune response to create stronger immunity) such as aluminum and others do not.
  • Some vaccines are designed to be injected once in a person’s lifetime and others require multiple boosters in order to maintain a high level of immunity.
  • Some vaccines contain inert ingredients derived from animal parts, others from human fetal tissue, and things like MSG (monosodium glutamate).
  • Some vaccines have been tested many times over a long period of years on individuals of all ages, genders and races, and others have been “fast-tracked” which means that there was a determination that there was some public health risk that necessitated them getting to market faster, so there hasn’t been the same rigorous level of testing. 
I could go on, but hopefully it is imminently clear that the vaccines Americans are encouraged to give their children (and have themselves) are very different from one another. Much like buying a car, it is important to do research on each individual vaccine in order to determine a risk/benefit ratio and decide what is comfortable for you. For example, when my daughters’ doctor recommended the chickenpox vaccine for them, I researched it as thoroughly as I could and ultimately chose not to have them get those shots because I felt as though the risks outweighed the benefits. Similarly, they have not had the HPV vaccine and I don’t foresee either of them getting it anytime soon. (If you’re curious about why, you can read this post particular to the Gardasil vaccine. Since I wrote it, there has been a great deal more information published by other people who are critical of both Gardasil and Cervarix that shouldn’t be difficult to locate online.)

Please don’t think that I am under the impression that doing research on the safety  and efficacy of individual vaccines is a simple endeavor. I am fully aware that it is not, and I know how lucky I am to have both the time and the educational background to locate, digest, and mostly understand the data. Many, many people are unable to do what I have done, and the system is unfortunately not set up to support any kind of patient education regarding vaccines or any other pharmaceutical, for that matter. Many vaccines are available through drugstores and grocery stores in America, which makes it a challenge to have an in-depth conversation with the provider regarding risks and possible complications. Even if you go to a physician for vaccines, many of them aren’t as well-informed about the individual attributes of each vaccine as they could be, and a great deal of them are unwilling to have a candid conversation about the ingredients of individual vaccines. In a perfect world, the person who is recommending that you inject your child with something would have looked at the studies done on that drug to determine whether or not it is a good idea, but the amount of information is incredibly huge. The doctors I’ve met are content relying on the word of the CDC that vaccines are safe, but because these drugs are created and sold by massive
corporations who may or may not be interested in the greater good of public
health, but who are nevertheless incentivized to create a product that they can
bring to market quickly that will produce enormous profits for their
shareholders. In turn, these corporations use that money to lobby lawmakers who
wield a great deal of power over government agencies responsible for
determining whether these vaccines are safe and effective and when they get to
go to market, as well as recommending where in the vaccine schedule they ought
to be placed. There is a very clear conflict of interest for many physicians
and scientists working on vaccines who are being paid by large pharmaceutical
companies to create new vaccines. And, in many states, regular family physicians are paid by the state to give patients vaccines, so the more children they inoculate, the more they are rewarded. 

Ultimately, this issue is much more nuanced than many of us would like to believe, and because it is so complicated, we often fail to have productive conversations about it. In my heart of hearts, I believe that we are all striving for a country with healthy children, but if we are going to get there, it will, at some point, mean that we sit down together without fear or anger or labels and get everything out on the table with that singular goal in mind. 











 

Diving in, Part 1

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For more than a year, I’ve been holding my tongue on the subject of vaccines for a whole range of reasons. The conversation seems to wax and wane, but now that it is front-and-center once again, I feel as though I am ready to put some of my thoughts and experiences out there.

I will do this in parts because the issues are incredibly complicated and I think they deserve a thorough examination, but because of an experience I had a year ago, I will start with the following letter.  I was invited, by MomsRising to be part of a gathering with Dr. Vivek Murthy, US Surgeon General, to talk about the MMR vaccine. It was positioned as a smallish group of folks that would dig in to the questions and issues surrounding the measles outbreaks that had recently occurred and I spent over a week doing research, asking other moms what they wanted to know, and crafting intelligent questions. When I got to the event, I learned that they had invited hundreds of other people to phone in and listen and instead of a conversation, it was to be a presentation by Dr. Murthy with a few select questions asked at the end (questions vetted by the presenters with no opportunity for follow up clarification or dialogue). Needless to say, I was disappointed and I later discovered that Dr. Murthy was on a tour of cities at the low end of vaccination rates and this was more PR than conversation.

When I asked Kristin, the head of MomsRising, about the format following the event and indicated that I had several unanswered questions, she seemed surprised and offered to forward all of my questions to Dr. Murthy so that I could get answers. I emailed her this letter with the subject line she suggested and have, to date, received no response.

The letter itself is lengthy, I admit, but despite that, I feel as though it barely scratches the surface of the complex issues surrounding vaccines. In Part 2, I will explain my overall thoughts on vaccines and I implore you to either ignore these posts or read them thoroughly and thoughtfully and respond with curiosity versus vitriol.

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Dear Kristin,
Thank you and the other folks at MomsRising for all you do
to rally, educate, and advocate for parents and children across the country.
The work you do is so important, based on what actual moms say they want and
need, and has thus far been amazingly effective. I appreciate your efforts to
get the Surgeon General in the room to address the concerns and questions of
parents regarding measles and the measles vaccine. I am keen to build on the
momentum and develop Tuesday’s event into a robust conversation that goes much
deeper.
I understand that the logistics of the event prevented it
from becoming an actual dialogue, but I think it’s important to recognize that
much of the substance of the issue has yet to be discussed. Because there was
no opportunity for folks to follow up on answers Dr. Murthy gave in real time,
or to clarify any of his answers by having an actual exchange with him or the
other two physicians on the call, I believe that there is much more work to
do.  Indeed, as demonstrated by the
poll taken during the conversation, 56% of the listeners report being either
“somewhat” or “very” concerned about the safety of the MMR vaccine. To me, that
speaks volumes.  I am writing to you
in the hopes that you will forward these questions on to Dr. Murthy or find a
way to engage him in another, more conversational meeting where these issues
are discussed. 
I am writing to you as a mom of two neurotypical kids who
have had most of their vaccines to date. I am also writing to you as a woman
with a bachelor’s degree in biology with a minor in chemistry who worked for
years in direct patient care as a medical/surgical assistant and then moved on
to work in Quality Assurance for the Washington State Mental Health Division.
While I agree that this letter is long, it is the result of several
conversations with other mothers who have concerns beyond what was discussed
the other day. I hope that you will take the time to read it and reach out to me
with any questions you have.
The vast majority of our questions have to do with the
safety of the MMR vaccine and, from your quick poll, I see that we are not
alone among the people who attended this event on Tuesday. Our main issues
around efficacy of the MMR are two:
  1.     Using global statistics to demonstrate the
    effectiveness of the MMR is an unfair comparison. To say that “there have been
    over 15 million lives saved by the MMR vaccine since 2000 alone,” as Dr. Murthy
    did in his closing statement ignores the reality that many of those lives would
    have been lost because the children are living in third world countries without
    proper nutrition or sanitation. It is incendiary and doesn’t adequately portray
    the situation here in the United States to use global numbers to talk about
    domestic issues.
  2.       I can locate no long-term studies that have been
    done to determine whether people of my generation (born in the late 1960s and
    early 1970s) who received their full recommended MMR vaccinations actually
    still have blood titer levels that show that they are immune to measles. In
    response to one person’s question, “Does immunity wane as people get older?”
    Dr. Murthy answered, “There doesn’t seem to be any evidence that suggests
    that.” I’m concerned that this conclusion has been reached without any actual
    scientific studies and it may, in fact, “seem” that immunity doesn’t wane
    because of the drastic drop in the incidence of measles in the US. It would
    seem to be a fairly simple examination to undertake a study of adults across
    gender, ethnic, and socioeconomic populations and determine whether or not they
    are still immune to measles thanks to the MMR vaccine. The term “herd immunity”
    or “collective immunity” gets used an awful lot with regard to vaccines, but I
    don’t know that it has ever been tested with regard to vaccinations. There is
    evidence that this phenomenon holds true in animal populations and with
    naturally-acquired disease, but I would like to see a study that shows that it
    is valid for vaccine-acquired immunity. We can’t base public policy on a
    theory.

The following are questions regarding the safety of the MMR vaccine.
  1.            On Tuesday, Dr. Murthy assured MomsRising
    supporters for the second time that they ought not to be concerned about the
    MMR vaccine shedding live virus. “Don’t worry about exposing others,” he said.
    “Carry on about your lives.” However, parents of children who are immunocompromised,
    either naturally or due to medications like chemotherapy drugs, are often told
    by their physicians NOT to get their other children vaccinated with any live
    virus, including the MMR. In addition, the vaccine insert produced by the
    manufacturer, Merck, is written as follows: “Excretion of small amounts of the
    live rubella virus from the nose or throat has occurred in     the majority of susceptible individuals 7 to 28 days after vaccination.” (emphasis mine). Additionally,
    this article     http://www.cnbc.com/2015/03/03/globe-newswire-public-health-officials-know-recently-vaccinated-individuals-spread-disease.html
    in a mainstream media outlet talks about the fact that experts know that
    recently vaccinated individuals can spread disease. And yet, parents who choose
    to delay or forego certain vaccines for their children are routinely vilified
    and blamed for disease outbreaks. I believe that this is one very compelling
    reason why so many parents are confused about these issues. Whom do we believe?
  2.       When vaccines are tested for safety, they are
    tested in isolation; that is, one at a time. But more often than not, they are
    administered to children in tandem with other vaccines. Why are there vaccines
    on the US schedule that are given in the same day but not tested together to
    assess their effects? Much like baking soda and vinegar are inert alone but
    explosive in combination, it is scientifically possible that when two different
    vaccines are put together, they will act differently in the body of a child
    than they did when tested alone. We can say that we think they are probably
    safe together, but without rigorous testing, it is irresponsible to give them
    to children with developing immune systems without being much more certain.
  3.       Also, when vaccines are tested for safety, they
    are not tested against truly inert placebos such as saline solution. Often they
    are tested against another cocktail of preservatives and adjuvants that are
    only lacking the vaccine itself. We are not just concerned about the vaccine
    components, we need to know what effect substances like aluminum adjuvants and
    MSG and pig gelatin have on the human body when they are injected. We also need
    to know what effects they have when they are injected in large amounts, as in
    the case of multiple vaccines given on one day. I wouldn’t eat a “safe” dinner
    off of a toxic plate, and I don’t want to inject my children with a “safe”
    attenuated virus that is held within a toxic set of preservatives. We deserve
    to know that     each and every component
    of the vaccines we are being given is safe.
  4.       All three of the doctors spoke of the Institute
    of Medicine as an independent body that reviews all of the safety and efficacy
    studies on vaccines (among other things). I am curious to know whether the IOM
    crafts and undertakes their own studies or simply reviews the studies done by
    other organizations that may have a vested interest in the outcome. The design
    of a scientific study is as much responsible for the data set that emerges from
    it as anything else, and if truly independent studies are not being designed,
    we cannot hope to get accurate information.
  5.       Dr. Murthy encouraged parents to talk to their
    healthcare providers if they have questions about whether or not their children
    should have a particular vaccine. I agree entirely, but I have to say that we
    don’t live in a perfect world where all families have healthcare providers that
    have the time to have detailed conversations during a well-baby check, have the
    intimate knowledge of what a vaccine package insert says, or even get their
    vaccines in a doctor’s office.     
    Families can go into Walmart and get vaccines for flu, chickenpox, HPV,
    pneumococcal pneumonia, hepatitis, meningitis and MMR, in addition to others. I
    am concerned that many of those folks do that because it’s cheaper and easier
    than making a doctor appointment, and I wonder how robust the patient education
    is or whether there are opportunities to ask complex questions, or if most
    parents even know what or how to ask. His answer is predicated on the
    assumption that most parents have a trusting relationship with their child’s
    doctor and I fear that that is inaccurate. I think it is also possible to
    discount the intimidation factor most people have when faced by a person in a
    white coat.      
  6.            Dr. Cohn and Dr. Murthy both talked about the
    requirements for providers and vaccine manufacturers to report adverse events
    to the VAERS. Further, Dr. Cohn explained that patients and families can also
    report to this body any adverse effects they experience due to a vaccine. This
    prompted many questions. First, how many parents are told that this is an
    option and offered information on how to go about reporting to VAERS? Second,
    is there an estimate of how many parents don’t report side effects because they
    either can’t tell whether they are related or because it will cause them to
    have to make another doctor appointment for their child, which is both costly
    and time-consuming? Third, in the case of a family who receives their
    vaccinations from a place like Walmart, how likely are they to report any
    issues and to whom? If they don’t know about VAERS and they weren’t going to a
    doctor for their shots in the first place, they aren’t likely to seek one out
    to report negative side effects unless they are severe. Lastly, Dr. Cohn said
    that the CDC, and the Department of Health and Human Services follows up on
    every report made to VAERS and I am curious to know what the threshold is for
    deciding that action is required in the form of further study. How many of the
    same or similar reports have to be made in order for them to determine that
    this is an issue and how much time elapses between the reporting of an adverse
    event and the review?      Finally, I am curious about something Dr. Murthy
    said in regard to autism and MMR. He said that, “because autism symptoms show
    up around the same time that kids are getting the MMR, there are some people
    who think the two are related, but they are not. This is why we need to really
    look at the populations, we need large numbers to do rigorous independent
    study. We need to look at broad data sets to see and what the data says is that
    there is no connection.” I am interested in whether there has ever been a study
    done on the relative health of vaccinated children versus unvaccinated
    children. We know that there are entire pockets of unvaccinated children in the
    United States and it would seem relatively simple to compare them to children
    who have been vaccinated on schedule. This seems like a straightforward study
    that would provide some interesting information about a range of potential
    issues that we haven’t considered might be correlated with vaccines.

Thank you for indulging our questions. I find it fascinating
that the amount of media attention given to this most recent measles outbreak
has spurred legislation in several states and, yet, 65% of the people you
polled on Tuesday indicated they are not concerned about the outbreak. That
said, I think this offers us a great opportunity to engage in some intelligent
exchanges about measles and the MMR. I appreciate your effort to get answers
for your supporters.  If you decide
not to forward this on to Dr. Murthy, please let me know and I will try to find
another way to have the concerns addressed. 
Sincerely,

Kari O’Driscoll

Ritual and Change

,

I am not much of a routine-loving person. I hate the idea of going to the gym and working out on the same piece of equipment every day or every other day. When I was working a job that required me to do the same things pretty much at the same time every day or every week, it wasn’t long before I got bored to tears and quit to find something else. Even as a writer, I’m much more productive when I write as inspiration strikes instead of sitting down in the same place at the same time every day.

However, I do love rituals. My coffee routine is the same every morning and when it isn’t, I often feel as though something is off. Often, on weekends, Bubba and I will get up with the sun and walk a couple of miles to our favorite coffee shop and back before the girls are even up, but even though the coffee and the company are exquisite, as soon as I get home, if I don’t get busy doing something else pretty much right away, I begin to feel as though I need to make myself coffee at home, too.

I also love the predictable things that come around once a year – my sister-in-law’s annual Easter dinner and egg hunt that includes a different mix of friends and family every time, but is always fun and festive; the way our neighborhood comes alive in the evening just after Daylight Savings Time when parents and kids are out playing catch or walking the dog and visiting on the sidewalk with other folks who are taking advantage of the fact that it isn’t dark at 5pm anymore. There is something comforting and grounding about those occasional events that I forget about and then find myself welcoming back.

I think it is against the backdrop of those rituals that I can feel confident about big changes. Lola is graduating from middle school this year and heading off into the world of high school. Eve will soon have her driver’s license and is increasingly away from home doing things with friends. My work seems to be on the verge of something big as well, but instead of feeling overwhelmed and freaked out, the touchstones of family dinners at Easter and cherry blossoms bursting out all over have given me a safe container in which to sit.

The trick, I think, is to spend as much time honoring the rituals I love as I spend thinking about the new, exciting things that are to come.

Mind…. Blown

, , , ,
*

I remember hearing, back in September or October, a report on NPR about microchimerism of mothers, and it is one of those things that has stuck in my craw for months. Basically, there is evidence that when a woman is pregnant, not only do things pass from her to the baby via the placenta and umbilical cord, but that fetal cells can cross the placenta and circulate in the mother’s body as well. There is also evidence that these cells can lodge in the mother’s body and morph into new cells, integrating themselves into the mother’s tissues and dividing along with the rest of her cells.

Yeah.

Whoa.

I think that means that I not only have parts of Eve and Lola in my actual body, but that Bubba is in there as well.

And I have to say that, as this notion has been stuck in my craw, turning around and around in some remote corners of my brain, it has conjured up all sorts of flashes of weirdness.

Like, there is part of me in my mother, too. Which has me thinking about the cycles of mother and daughter and mother. And that leads to the idea that no matter how much we rail against becoming our mothers, maybe our mothers become us a little bit more, too, and so there’s just no escaping the eventual similarities. It puts me in mind of parallel lines that aren’t quite parallel, so that at some point in the distant future, they will touch, if only for a brief moment.

And it makes me think that (as much as I think my mom would hate this idea), there is some of my Dad floating around in her, too, since she had two kids with him. And, while it is of some comfort to me that I carry some of Bubba with me wherever I go, I wonder how much it would bother me to know that, had I not chosen to have a child with someone (for example, if I were sexually assaulted and it resulted in a pregnancy), that I might always have some part of them in me.

Beyond that, it makes me wonder about whether Lola carries some part of Eve in her thanks to being the second child. Were the cells from Eve so much a part of me by the time I got pregnant with Lola that some of them transferred into her sister? I think I might have to wait for just the right time to broach the subject with them…

And is there some evolutionary purpose to all of this? Does it exist to make the familial bonds stronger? To bind parents together more tightly? To bind mothers and children together in some elemental way? To tighten the strings of sibling connection? I have often noticed that when my children are in pain, I feel it, and even, to some extent, when Bubba is suffering, I have the sense that I am commiserating on a deeper level – something that goes beyond empathy, it seems to me. Could this be because I have had children with him?

It is all pretty mind-boggling and, to be honest, I find it very entertaining to think about the possibilities. I know a woman who tried to get pregnant for years and couldn’t, so she ended up adopting a fully fertilized embryo from a fertility clinic and she now has a lovely little girl whom she describes as a “great passenger” during the pregnancy. Does she now carry the DNA from two complete strangers in her body and will her subsequent children carry that, too? Whoa. Just, whoa.

It really does lend credence to this notion that we are all connected, and I have to say that I like it.

*I searched for pictures of chimera and was dismayed that all the ones I found were hideous and frightening. I chose this picture of a piece of art that hangs in The Louvre because, technically, it has Pegasus on it, so it qualifies, and it’s beautiful.